I started getting sick a year and a half ago, and my condition is still declining. I've had many tests; blood tests, brain ct and mri, breathing tests, heart tests, nervous system tests. The only thing found wrong with me was postural orthostatic tachycardia syndrome (low blood pressure, high pulse) which is now treated. I have to spend almost all day lying down as I can no longer walk or sit up much. My drs are all out of ideas of what could be wrong with me or what could help. If I decline much more I'll practically be a vegetable.
What's it been like for those of you who also have this? Did anything help you?
Yeah, I have it too. I will need to kill myself before, as you say, I'll be stuck in bed for life.
Is there anything worse than this? I mean, I'd much rather have something lethal or just merely painful.
Cameron Nelson
A few things were checked. I think iron, b12, folic acid, vitamin d, potassium. Only potassium is low from the blood pressure medicine.
Jordan Perry
It's pretty much that physical and/or mental exertion cause post exertional malaise. So after doing things you get exhausted and are in pain, this can last for days or weeks.
Blake Johnson
>Is there anything worse than this? Not many things. I'm honestly jealous of my parents health and they've both had a lot of cancer. Even being terminally ill my mom is far healthier than me.
Luis James
I can't even handle ritalin, I don't think cocaine would go too well with me. Steroids actually help me a bit but they're not really a long term option
Ayden Bennett
I completely understand that jealousy. I read that roughly 1 in 200 suffer from this, so it's fairly rare. Do you know anyone else who has it?
How do you feel about suicide?
No, nothing helps and it only gets worse all the time even if I do nothing, and ESPECIALLY if I do something. I've had it since 2014 but it's the last 6 months that it has really begun to spiral out of control. I was ultra-healthy before I got this, perfect diet, lots of long walks in nature and cardio running every two days, etc. And then I got an infection of some kind, and when it was gone I was left with this.
I've been trying to make life work but it's not feasible much longer.
Brody Diaz
An old friend's mom used to have it, I think she spontaneously recovered.
At the moment I'm not really considering suicide, I too strongly desire to get better and live at least a half normal life. But if things continue to get worse I think there's a good chance I'll commit suicide. At the moment I at least have the internet and online friends - once I lose those I'll have nothing left. No point in being a burden on others when I don't have anything to live for or enjoy.
That's disheartening. I completely relate to the getting worse especially if you do something. I like to not push myself beyond my limits or all I can do is lie in bed in pain. At least if I keep within my limits I have a few small joys left in my life. Yeah before getting sick I had a healthy diet and was active. It's really annoying when the odd person tells me all I need to do is move around more and I'll get better - I had to give up running and moving around because it was just making me sicker.
I wish you didn't also have to suffer this user. I had a few other conditions before developing this, but none of them compare at all to how bad cfs is
Nolan Carter
oh man, i thought i was the only one with this diagnosis! i used to have CFS in high school (and i guess i still do) so my doctor gave me adderall and it kept me wide awake ever since. too bad that dr moved and i lost my prescription years ago, but i mostly grew out of that tired phase of having CFS. it still doesnt stop me from easily taking 12 hour naps though. i'll always be sleepy i guess. i'm with you on this one man, i'm always more naturally tired than others. depression and only two meals a day does not help in the slightest either. they gave me all sorts of blood tests, urine tests, CT scans, everything, and it all came out inconclusive. apparently i'm a normal healthy male but at the time i was teetering on the point of being more tired than a chemo patient. it was really disheartening. i was able to fall asleep in class with my hand holding my chin up like i was still listening to lecture, thats how bad it got. i hope it's just a phase for you like it was for me, because that condition is a fucking mess to deal with to be honest. i never would want anyone to have CFS.
Austin Rivera
Are you mostly better now? How long did the tired phase last for you? I'm glad things aren't as bad for you anymore user, it truly is a nightmare
It's kind of weird - when I developed cfs I also developed insomnia, but if I do too much physically I'm falling during the day and don't need as much sleeping pills at night.
Ryder Hill
Have you been tested for Lyme Disease?
Bentley Stewart
No I haven't. It did come up and I've never been bitten by a tick and was not overseas before I got sick - our ticks here don't have Lyme
Lincoln Brown
Yeah it occured when i was young, around 8th grade to 10th I think is when I had it, so I don't know if my growth spurt attributed to having it, or not, but all I know is it went away after my sophomore year of high school, but I'm not sure it even went away completely. Because like you said I sometimes overexert myself and find myself EXTREMELY tired afterwards, like unreasonably tired for the amount of work done. I took martial arts during my sophomore year of high school and by the time I got my black belt after senior year it went away. So I'm not sure if the martial arts was a cure, as it was getting rid of excess energy and keeping my body healthy, but all I know is a combination of adderall, mixed martial arts, and just getting to sleep on time really helped change things around. But that's not what cured me, what cured me was just growing out of it, which I'm not sure can be the case for everyone. It's a tricky condition, with doctors not knowing what causes it and all. My bet is it's a genetic anomaly that only occurs in a small amount of people that comes out when the person in question hits puberty or around then.
Camden Nelson
Also, double posting here, but since you mentioned this, my mother also did say it could be Lyme's disease, but I was blood tested and the results came back negative. I'm from the pine barrens of south jersey so I can't say for certain what caused it, but I know for a fact that it wasn't a tick. Even though our ticks carry the disease, I've always been sure to check myself for ticks and never skip on the blood work. How are your blood levels? Could this be due to a lack of iron in our blood? or a vitamin b12 deficiency? I'm sure most of us on Jow Forums could use a bit more vitamin D from the sun. All in all its probably a very specific deficiency combined with genetics to cause this very debilitating syndrome.
Logan Bailey
Get them to check the development of your lymphocytes. If they aren't developing, the body can do some weird shit trying to condensate, autoimmune starts getting fun. >t.primary immune disease.
Juan Clark
Compensate. Fuck it.
Cooper Perry
this guy also has a point the lymph nodes can cause some weird fucking reactions when they get all messed up. check to make sure your lymph nodes arent acting up, but as in my case, they were not the cause of CFS at all.
Aiden Lewis
Small world man Im from south Jersey also. I was just asking because I picked it up 4 years ago and it caused a shitload of problems, the fatigue being one of the main factors.
Thomas Martinez
Is it possible to induce this in myself?
Brandon Campbell
so maybe it's in the water? kek nah all jokes aside i have no idea what causes it and the fact we both have it and we're from the same area isn't very cool. i don't believe in coincidences, i believe in statistics, so maybe we were bit by a tick when we were younger and it layed dormant for quite a few years? but its not lyme's disease so idk wtf causes it. maybe it's a genetic off branch of lyme since it carries the same debilitating symptoms?
Dylan Kelly
It kind of sounds like you still have it, but it's mild. Have you tried getting diagnosed with ADD? I had psychiatrists practically throwing scripts at me, even though I didn't get diagnosed till I was 17, and it's not even that bad.
That's interesting that you think maybe martial arts helped you recover. I'm too sick to really do much and I'm already showing muscle loss. Maybe I should give stims another try if they might help me do more, thing is they sometimes give me really bad chest and left arm pain and I occasionaly faint from taking them. If anybody has any tips of what might help with ritalin giving me chest pain and fainting I'm keen to hear your suggestions. I've had every heart test except an angiogram and they were all almost normal, so it shouldn't be an issue with my heart that's making me sick
I actually didn't get sick until I was 24 so I don't think it's related to puberty for me. But my health in general did get a lot worse at puberty.
Thomas Torres
i would have, but i wanted to join the air force and fly drones overseas, so I opted out of having any mental disabilities for fear of being rejected. It sounds like you may just need to stay hydrated more, but prescription drugs affect people in all different ways. No two people are exactly genetically the same. Adderall is essentially methamphetamine salts, so 20mg of non-extended release adderall had me awake all day until I went to sleep. Never experienced any pains before on it, so maybe it's a hydration issue since you are technically taking a little bit of meth, after all. It sounds like you're just as healthy as me to be honest, but you're where I was a few years back. I'm 23 and barely recognize the symptoms as they're not that bad, but like you said they're still probably there but I just don't notice, as I work my schedule around what works best for me. I do sleep a lot though. Did your mother ever have Lyme's disease? Mine did, and it's a complete possibility that she could have passed me some genetic garbage attributed to having Lyme's before she got pregnant with me.
Angel Mitchell
Thank you for this suggestion. I think it's probably been looked at when they did a full blood count, but I should make sure
Jose Jones
No problem. I like helping people out. My mother taught me that kindness always repays in full. Anything I can do to help, user. I hope you feel better and make a full recovery. I know how this feels all to well.
Chase Martin
>Not that I'm aware of. Why on earth would you want to get this?
Grayson Hernandez
Why exactly wouldn't I want this?
Asher Murphy
Chronic fatigue syndrome is psychosomatic malingering nonsense.
Grayson Reyes
Oh yeah, being in the air force that's a good decision.
Huh I never knew it caused dehydration. I'll try drinking more next time I give it a try. I remember I used to hardly eat on it, but don't remember whether I was drinking much
It doesn't feel like I have any health left, lying in bed 23 hours a day sucks. I'd be so happy if I ever started to get better, but so far I'm just getting worse
No my mom never had Lyme, she was very healthy when/before I was conceived. That's interesting, it certainly sounds plausible. Lyme is certainly another nighmare in itself
Henry Baker
It makes your life literally unlivable, have fun sleeping 24/7, and having no energy to even make food, shower, or watch entertainment. You pretty much become a cancer patient at that point. You'll get better brotha, it all starts with a healthy diet, exercise, and proper multivitamin intake. I guarantee if you do all those 3 things you'll feel better within a year. The hardest part is motivating yourself each day. Sorry I gave you a sort of casual meme response, but I truly think that'll help you. If it doesn't it's time to start making calls and seeking professional help from specialists that have dealt with this condition before. I'm sure shore medical group has you covered if you have the proper insurance.
Hudson Davis
I appreciate your well wishes user. I used to think that they'd find what was wrong with me and I'd get better, but it's getting harder to keep that hope up as time goes on. Making a full recovery would literally be a dream come true
Dreams do come true user. Two months ago I needed a lateral sphincterectomy on my asshole because I was in so much pain from an anal fissure I would shit blood and be in constant 24/7 pain. Couldn't sit down without feeling like my asshole was being raped by a steak knife. Dealt with that condition for almost 8 years before finally giving in and getting surgery, because it was not healing on its own. I thought it would heal on its own but it didnt, but the best choice in my life was getting that surgery. Not only am I fully healed 2 months later, but there is absolutely zero pain. I used to stand in the shower and cry, just bawl my eyes out because I was in so much pain. I used to think there was nothing I could do anymore, that I would never get to travel and see the world, and be lame the rest of my life. That all changed when I did something about it and talked to a surgeon about my options. I trusted him, had the surgery, and everything worked out in my favor. No more pain, perfectly fine asshole, still feels the same, and I can live life like a normal human being again. Hope comes in all different forms, you just have to find what works for you. Never give up. It's in our blood, our very nature, to keep on living. It's what makes life so precious. Life is beautiful, wherever you make it. You'll recover and be okay one day. I know this. Because I did.
Robert Russell
Children are born with this condition you fucking idiot. That's like telling crack babies to stop smoking crack. You dumb ass nigger, lol. Get outta here.
Xavier Fisher
This user is spot on. It's miserable to have. Why do you want to be sick?
Anthony White
>chronic fatigue syndrome Nice meme illness
Angel Price
I thought I had it but turns out I had serious breathing problem through my nose that fucks up my sleep. I had to do a nose surgery to fix it (septoplasty + turbinoplasty). I would advise you to visit an ENT doctor for endoscopy and do sleep study to eliminate other issues.
i think i have a serious issue with fatigue. maybe it's a thyroid problem. maybe it's just the consequences of obesity. i tell myself over and over again i need to do this or i need to do that and i cannot bring myself out of my chair. when there's no way getting around or putting something off and i'm doing some sort of chore or errand, i'm instantly exhausted.
i'm leaving for a trip to Las Vegas this weekend, and i'm terrified that the walking around, drinking and eating bad food is going to exhaust me bedridden. but when i get back, i want to seriously change this lifestyle. i don't have health insurance for the next 30 days, so i would like to determine on my own if the fatigue is from my shitty lifestyle or if it's an actual medical problem.
sorry for blogposting. i'm just glad that i am not alone. i'm sorry to everyone else experiencing chronic fatigue. it's an absolute bitch. i hope you all can identify triggers or change your lifestyle so that you can feel less bound by this awful fucking feeling.
Camden Wright
Theres a possibility of a co-infection not being picked up by standard lyme test, false negatives are common also. I suspect I have one since I did the cycle of antibiotics after I was diagnosed and the symptoms never faded. I have 40% of the energy level I should have as a 23 year old with no deficiencies to cancel out.
Obviously could be something else but considering our area, a bit of research could help guy.
Brandon Hill
see a therapist. not even memeing. it can be mental and cause your physical syndromes. give it a try
John Morales
Whats it like to come up with a fake as fuck illness to justify your laziness? I guess on Jow Forums you can come and get that shit validated by people who are just as delusional as you.
Imagine if you had an actual fucking illness, imagine WHEN you get an actual fucking illness, and you used up everyone you know's pity pretending your fake laziness disease debilitated you.
Charles Harris
How do you deal with the aches and pains from being in bed so long and sleeping so much? I don't have CFS but sometimes my depression will spiral and I'll spend days on end in bed just sleeping with only 4 or 5 hours of consciousness a day in order to escape from reality and afterwards my body always feels like absolute shit for days and days. I can't imagine what it would be like and how much worse it would be to be basically bedridden for years.
Illness is defined as a disease that is affecting the body or mind. If fatigue is interfering with your life, it's an illness. Lazy is a personality trait. Fatigue is a symptom of mental or physical unwellness. You're a close minded fool.
Anthony Phillips
Although my diet in general is good, I have started occasionally having the odd soft drink and cookies because I'll think 'what's the point, it doesn't matter' - I really should stop that. Unless if stimulants happen to help me exercise, I don't see myself being able to exercise, it just makes me too sick. I appreciate yours and the other responses I've gotten. It's nice to hear from people who've gone through similar things. And encouraging to hear that it might get better
I'm not too sure what specialists too see that I haven't already. So far I've seen a cardiologist, immunologist, gastroenterologist, neurologist and just started seeing an rehabilitation/exercise physician. I actually live in Australia.
Logan Young
Nah. I'm not close minded, I understand people like you all too well, which is why I know it's bullshit.
The reason you're "chronically fatigued" is because you're NEETs who spend all day doing the same repetitive shit browsing image boards and forums, and when you've done it enough your brain just shuts down and your body follows because you been feeding it pablum for hours.
If you actually did something that required effort, like exercising, or working, then you wouldn't get "fatigued."
Justin Bennett
Having that for 8 years sounds really tough user. I'm happy that you've recovered so well. I hope that you're able to see all that you want in the world. It's beginning to get hard to know what to do next, when it seems like doctors are giving up on me
Elijah Clark
>I understand completely anonymous people who said 2 whole sentences to me oh, okay. so you think you understand everything, when in reality you make premature judgements and make yourself look like a close minded fool.
Cameron Howard
I haven't seen an ENT but I actually did have a sleep study done, it was all normal. I'm glad that you found a fix for your problem user
Wyatt Jenkins
I've had my thyroid and adrenal hormones tested and they were normal. I asked my gp and a couple specialists about my hormone levels and they thought it didn't need to be checked
Evan Gutierrez
what the fuck did you even read the thread you stupid nigger first off, theres no way being a fucking robot causes this because i had it when i was a child, and if you fucking read, like i mentioned earlier, i also mentioned i dont have the condition anymore. that doesnt mean it doesnt exist and its some sort of fucking made up bullshit stupid nigger, go back to smoking meth in your fucking trailer this thread is for people who actually want to discuss the medical problem and not talk shit go be a nigger somewhere else
yeah, you sure sound like an intelligent, knowledgeable person
Liam Jackson
lmfao the most intelligent people are the ones who get mad because it's so fucking unfathomable stupid retarded nigger face monkeys like you exist on the same planet as us. its like an anomaly. and aww, are you triggered i called you a nigger? big ole lip smacking nigger!!!
Asher Watson
intelligent people don't call random people nigger, you absolute mongoloid.
you know i'm right about you being a lazy piece of shit in search of an excuse for why you're such a failure
there is no secret, you're just a dumb, lazy fuck up, and at some points the burden of being a complete amoeba of a person has gotten to you so much that it has paralyzed and "fatigued" you
and just so you know, as someone with more education than your entire hillbilly family tree put together, the medical professionals you have talked to are laughing at you behind your back
there's a word for people like you in medical settings, it's called a MALINGERER
Kevin Taylor
When you're healthy and normal doing the same thing repeatedly should get easier over time, even if you're obese. When you started getting fatigue, did you find that things you used to do with ease started making you exhausted?
Whether you have a medical condition or not that's causing this fatigue losing weight is only going to help. Likewise I hope that you find out what's causing your exhaustion, it really is horrible to live with. Good luck with your lifestyle change user
Jason Green
I actually have been thinking about this. My social anxiety keeps making excuses for why I shouldn't do it.
Aaron Turner
I only became a NEET after developing CFS. First I had to give up exercise, then I had to quit my job, then I had to drop out of uni. I wish exercise or work could cure what I have
Thomas Jenkins
>there is no secret, you're just a dumb, lazy fuck up, and at some points the burden of being a complete amoeba of a person has gotten to you so much that it has paralyzed and "fatigued" you Geez are you blind or just trolling? He's recovered from the fatigue he used to get
Jack Lee
its a really bad troll lol nigger
Blake Adams
What you have sounds kind of like narcolepsy
Carter Kelly
No worries. What comes around goes around. Best of luck with it, mate
Elijah Cruz
i do, but i'm genuinely too tired to get involved ITT
basically you need to rest, know your limitations, never push yourself past them, and learn some key phrases to let people close to you know you've gone into fugue like "can't communicate right now, i'm fatigued"
