IBD

Looks like I've got Ulcerative Colitis or Ulcerative proctitis after shitting blood for 6 months and finally having a colonoscopy to see what's wrong.
I want to know if anyone has any sort of autoimmune disease or even Irritable bowel syndrome and how you manage your health and fitness and lifestyle around something as fucked as this.
Also I want any of you guys out there with concerning symptoms to see a doctor.
I eat well and work out and get this yet some fat fucks who do nothing are completely fine. Trying not to be too bitter about it but it's pretty rage inducing.

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You're in for a whole new diet user. Good luck with it all.

Calorie restriction and eating less inflammatory food like grains/oils/sugar/low quality meat helps me. Turmeric and spices are good to use. All food is inflammatory so the less you eat the less your symptoms will probably be. I have lupus though and idk anything about what you have.

Yep I'm absolutely thrilled to be anaemic and restricted of dairy and red meat, at least the 6 years of working out and watching what I eat has paid off right?...
Ok so are you quite "small framed"? I don't wanna waste away.
What is worst of all is I'm in the army and I'm not sure if I'll be kicked out if I tell them

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I will stay away from processed meats for sure but I love bread and wraps so that will be hard. So is things like rice and chicken breast the standard sort of meal for you?

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damn I'm so sorry bro I have IBS so it's not nearly as bad but in answer to your question I don't have a job and am still seeing a gastroenterologist to try to get my shit sorted out hur hur hur

I'm afraid I have no advice. Have some loperamide on hand at all times. My doc recommended taking something called IBGuard, two pills in the morning before breakfast. It's OTC but pretty expensive. See if your insurance can cover it if burgerlard.

Red meat isnt bad for you, if its grass fed. Grain fed meat actually has a much higher level of inflammatory fats

Thanks very much for the reply. I wish you the best of health for your IBS.
Don't be too sorry because initially I thought I had bowel cancer now I know what I've got at least. If I keep my job it's all good.
I'm not from burgerland I'm Australian and I have private health care however it's worthless which is why I've been suffering for 6 months without knowing on the public system.
If you can afford a colonoscopy definitely get one. The sedation feels amazing and knowing what's going on is very important.
Really? that is relieving. I haven't seen a specialist or nutritionist yet so going on google info. I eat red meat basically daily currently

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fiber = bad
get most your calories from fat, whenever you eat plants make sure you cook them thoroughly. try to get most of your calories from animal product. (diary if you can tolerate it is amazing)
take l-glutamine every day, whenever you eat is best.
try to fast as much as you can sustain while maintaining caloric balance
i wasn't diagnosed with IBS but i did have insane stool zonulin levels which meant intestinal permeability. when i dealt with it my autoimmune conditions (varying from hasimotos to arthritis) decreased by like 90%

I try to eat starchy vegetables like sweet potato/peas for carbs because grains usually dont make me feel good. I avoid chicken because its raised/fed poorly and not very high in nutrients. I usually eat grassfed beef or fish. Just try elimination diets and listen to your body though, everyone is different.

Oh man I have been having metamucil for years, maybe worng move. I'm so confused still with what is bad like dairy or meat and what is good. I need to see a specialist but it's really good to hear from you guys first hand what works. If fasting helps I'm definitely down for that. I want to get into law enforcement but I think this has destroyed those hopes. If it is manageable though maybe I still can.
I think I need to do a fodmap kind of diet and dial in what doesn't agree with me. Even if I go butchers and avoid supermarket hormone processed shit I guess

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food sensitivities vary by person, you really should see a specialist if you can.
I never ended up taking this, but my doctor wanted me to take a foodsense test (i think Salveo does them?), but didn't since it was $250 out of pocket, and I had pretty much figured it out for myself. If you're willing to pay for it, sounds like you could benefit from it.
salveodiagnostics.com/tests/food-sensitivity/foodsense-test/

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thanks for the well wishes
IBGuard is just peppermint oil i think so whatever brand name they give it in straya would be fine
yeah you should see a specialist, some people with bowel problems DO need more fiber, some need way less. write up a list of questions beforehand, always helps me because i forget in the moment and kick myself on the drive home

damn my guy I have celiac disease but really I can control that with being careful with what I eat. fuck gluten. Obviously forced me to cut out shitty carbs so it's helped a ton.

forgot to say, I think this will help you too since your diet will be forced to consist of less inflammatory foods. That's the most frustrating shit, traveling and planning out meals around your restrictions

I smash renes into me.

Its more mental than anything aka caused by stress because the symptons are unreal so taking it easy and managing stress is the main thing.

Also loosen your belt after you eat and find out what foods get ye. FODMAP shit like mushrooms are the worst for me.

Thanks I'll check that out. I was referred to a specialist but I'm on the Australian public system now so could be waiting a while.
I think allergies or inflammations are pretty personal so would be worth having a test.
Thanks yes that's a good idea about the questions when seeing the specialist.
I think I'll be in the same boat as you but should wait and see if it's a food that fucks me up inside or not.
What are renes?
I actually realised a bit with what I have is that at least some part is mental because I am fine all day at work but when I know it's near knock off time and I think about going home and having a shit suddenly I get the feeling to go really bad. This isn't just a regularity or timed thing either as I work different hours

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Theyre an antacid in the UK. My bad i spelt it wrong.

Starting my last job i was cramping up so bad i threw up before work EVERY DAY. Doctors still didn’t diagnose me with anything. Not cancer: get out. Gave me some laxatives that do help.

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Oh ok no worries. So you never got a diagnosis?
That would be terrible

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I was diagnosed with UC this year. Fatty red meats absolutely destroys my tummy as does diary and stress. Apart from that I’m pretty stable outside of a flare up.

Dairy* sorry boys, posting in between diddly sets

Exactly this. I went in thinking I either had crohns, cancer, or UC. My granddad died of bowel cancer so I was a bit scared to say the least, but you need to know what’s happening and the medication worked pretty much instantly for me. Good luck op.

Sorry to hear. So how do you manage a flare up and how long does it last?
Yes this is also what I narrowed it down to. Ultimately UC was the best of the worst so I wasnt't too horrified when they told me.
You mean the UC medication worked well for you?

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A low residue diet (what you need to go on before a colonoscopy, basically no fibre) helps as does going back on rectal mesalizne (no homo). I was lucky and responded well to mesalizine so didn’t have to go on shit like remicade or pred (apparently the worst in terms of sides). If you’re in aus like me you should really go private and find a good specialist because you’ll be getting to know them and they help immensely.

Ok thanks, I'm definitely going to shop around anyway and get what my private cover can afford. I'm not wanting to get on drugs that give you moon face or get bowel resections that arent needed

Massage lower stomach

Low ab/Rectus abdominis trigger points can cause IBD symptoms

Seems like my inflammation is lower down so maybe this may help. Much appreciated.

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Hey man, guy with UC here as well. I went on Asacol for a while and felt great on it but it's annoying to take so often and ended up switching to Lialda for maintenance and flares.

The worst of it now is my rectum which makes me have to use Rowasa at least every other night, otherwise I crash from lack of energy and feel crappy overall.

Find your foods that work well for you. For me, chicken, potatoes, and plantains are my go to foods that I eat every day. Also, get a good probiotic like VSL #3. Good luck friend

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Very helpful thanks so much for sharing.
How do you find the disease anyway? Like how much has your life been impacted?

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It's been about 5 years since I was first diagnosed. In terms of lifting, I've been affected quite a bit. I lost 20 pounds from severely restricting my diet to find out a lot of what I could or could not eat. It sucks not being able to be away from my meds for extended periods of time but overall like someone mentioned in this thread, it's probably the least worse out of similar conditions.

I only need to stick close to bathrooms if I am doing poorly due to forgetting to take meds or eating something really bad for me. Otherwise, I'm pretty normal but lack motivation to exercise at times. Or maybe it's because I'm not as young as I used to be. It affected my relationships with close friends since I was worried about having to go to the bathroom or being unable to partake in foods/parties with them but I think you're past the hard part of getting on meds.

Like you, I'm bitter about it too, but I try not to let it get to me. I wanted to off myself at one point since I was unable to afford meds but I'm glad I didn't, and it shows every day.

Thank you so much for your honesty. Do not ever think about self harm again. I'be been through that too and you and me both are fighters and take whatever shit is thrown at us. Fuck packing it in cus our guts aches sometimes.
I appreciate all the help and info from you. I am going to keep soldiering on as it is in my nature anyway. I'm still bitter but it's early days and I'm not gonna let the rest of my life get dictated by a disease.
Stay strong and keep charging

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Leaky gut or bacterial overgrowth can cause this so u could look into that, get on some probiotics or if u can get ur bioflora checked

Yeah should probably get that checked. I do drink probiotics but something could be out of whack

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I have something like calic but i was tested negative for it anyway eating most grains gives me outbrust on my skin and makes it really dry so it cracks easly. Doc suggesed cutting out gluten but that didnt help much isnce it only stoped it spready my skin was still fuced after a year of this "diet" i was starting to get brainfog and sever vertigo. Blood was fine and all test were okay ( tho i never checked my gut)

Anyway was solved it for me was learning a shit ton on food and diet and avoiding all porcessed sugars and carbs.

BROTHER, I have had UC for 10 years. After many diets and all of the drugs, I have settled on one thing:

Treat your colon like it is a type ii diabetic. There are some studies showing that insulin enemas are effective in treating colitis. Diabetics also have elevated levels of TNF-a (many popular UC drugs inhibit TNF-a).

I am in full remission (after years of endless suffering and drugs), and have been able to maintain full remission by a combination of a mostly ketogenic diet combined with fasting (OMAD to 1-3 day fasts). The best thing is that the more healed I am the less strict I have to be about this diet.

UC is a complicated disease, so this diet might not work for everyone. A typically OMAD for me would be something like:

*tea or black coffee all day when not eating, also occasional snake juice
*pork chop, chicken, steak etc.
*greens like spinach or broccoli
*homemade 24 hour fermented yogurt

To test if fasting will help your colitis, try going on a 2 or 3 day fast and note (on a sheet of paper) any difference in feeling. It takes a while (weeks or months) to heal, but fasting should reduce symptoms.

If that diet is too extreme for you to try, then I strongly suggest eating whatever sounds good, but only one meal a day, even this should help.